Each day across this country, those three million moms, dads and other care-takers I mentioned wake to the sounds of their son or daughter bounding through the house. That is - if they aren’t already awake. Truth be told, many of them barely sleep—or when they do – they somehow sleep with one ear towards their child’s room—always waiting. Wondering what they will get into next. Will they try to escape? Hurt themselves? Strip off their clothes? Climb the furniture? Raid the refrigerator? Sometimes – the silence is worse.
These families are not living.
They are existing. Breathing – yes. Eating – yes. Sleeping- maybe. Working- most definitely - 24/7.
This is a national emergency. We need a national autism plan – NOW.
I’m certainly not claiming that I have any answers, this is a hugely complex issue and frankly just writing this post this has taken up all of my energy on the subject; I'm tapped out. And while it’s impossible for one voice to be representative of all of us, AS just seems to be particularly bad at it. Yes, we should craft a national message, but it should be written by reasonable minds and reasonable people, not by extremists. Not by Autism Speaks.